Children’s Palliative Care (CPC) is a specialized area of adult palliative care tailored for children with diverse and complex conditions, including neurological, oncological, and congenital disorders. CPC focuses on enhancing the quality of life for children and their families through comprehensive care that addresses physical, psychological, relational, and social needs.
The project team developed Liber-, a meta-design framework intended to support innovative and inclusive CPC projects. Liber- makes use of a holistic approach to wellness by focusing on emotional, psychological, social, and spiritual needs: it promotes human connection and relationship-building, aiming to improve the overall well-being of children and their families.
In summary, Liber- represents an innovative and adaptable framework for developing CPC projects that enhance human connections and well-being. Its successful application in Heartrings underscores its potential to positively influence Paediatric Hospices globally. By fostering projects that focus on the holistic needs of children and families, Liber- aims to become a best practice model, improving the quality of life in complex care environments.